Dance Celebration

Oh what a night! Glen Sanders Mansion was beautifully decorated for Nick’s Fight’s 3rd Annual Dance to be Healed Celebration!

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Angie Silipigno, her girls, and Courtney Hill did an amazing job decorating the tables with red and pink leis, hats lined with hearts, fun eyeglasses, purple beads, with votives and mirrors provided by the staff. Red lights lit up the walls and photos of our families dancing from previous dances lined the room.

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The children and young adults looked beautiful and handsome. The little gals were very excited to get their hair done by Courtney and Jackie of Pixie Salon and makeup done by Ebony Muniz and Autumn Wright, and they twirled in their dresses and fancy shoes. Family photos were taken by Elizabeth Fox Photography. Many memories were made.

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Courtney of Pixie Hair Salon styling Maddie’s hair!
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Jackie of Pixie Hair Salon curling Regan’s hair.

For the third year in a row, Mo Haskins of Cool Cat DJ played music that kept the kids on their toes. Cameron knew every word to each song and danced around the floor interacting with everyone!

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Managed to get Cameron to stand still for a photo!

Ali was adorable! He is Nick’s Warrior for the run this year on September 30! Mark you calendars! His sisters Sara and Asma volunteered with Nick’s Round Table along with many other teen volunteers.

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Savannah and Maya hung out at the kids’ table doing activities.
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Nick’s Round Table Teen volunteers!
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This table was packed all night!

Little Lucas danced all night and learned the sprinkler and mashed potato dance. Abby and Regan were inseparable. I loved seeing Brittney, Kacey, and Kendra–incredible young adults giving back despite their journeys.

I enjoyed talking to all the families and am grateful many were able to come and feel the love of family. For those who couldn’t come, you were missed, but we will see you at upcoming events. When I peered around the room, I saw children at the craft table, others were at the Open Box Photobooth sponsored by Christina Primero. They ate quickly and stayed on the dance floor. Parents, Melodies’ staff, friends, and extended family connecting and supporting one another, enjoyed their time together. This is my favorite event!

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Joe Santoro, Lucas’ dad, and George Sisco, NFTBH Board member, Kendra’s dad are both getting in the spirit!

Thank you to all the generous sponsors: Maddies’ Mark who sponsored all the families, Play it Foreward for the photobooth, Maria, Lucien, and Nancy from Glen Sanders Mansion for doing a beautiful job, Elizabeth Fox Photography, and Out of the Box Photobooth.

 

The Power of a Parent’s Words

The heart of a grieving parent is never healed. We don’t know how we can live with such a tragedy until we are in it. So often we exist in a state of wishing to be happy and drowning in sorrow because of our loss.

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Justin-a warrior who we lost 1 year ago today.

Today marked one year since a beautiful and courageous young man lost his life to cancer. Justin’s mom is feeling the pain I felt nine years ago on Nick’s one year angelversary. We can’t take the pain away, but can only let her feel our love and comfort. Everyone grieves differently, but a parent’s grief is soul deep.

It was appropriate that today I shared my book about Nick’s journey at my book signing. Even as I feel gratitude for everyone who came and spoke with me, I feel sad, because my number one fan isn’t right here with me.

When I started Shimmer’s Eggs, it was a creative memoir about my boys’ lives. After Nick passed, writing this book was a cathartic journey for me to understand what it meant to no longer have Nick. Losing him changed the ending, and I would never have written the same book if he had lived.

I know this book helps others. It’s difficult to feel joy when there is so much pain. But as Justin’s mom wrote today, she has much to do and knows her son waits for her. Her words helped me tremendously today, even as she is hurting.

As much as I miss my boy, I also have much to do. I have hope and love to share. I know that whatever choices I make, and however I choose to help people, Nick would approve, because it comes from my heart.

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Nick, 2008

Thank you to everyone who holds me up and supports my mission and message. It keeps Nick’s spirit alive just as Justin’s amazing mother shares his beautiful spirit. They both are missed today and always.

3rd Annual Dance to be Healed

All it takes is one moment in time when someone opens their heart and gives all they have. The connection between a nurse and their patient can be life-long for a child battling cancer. That nurse is the safety rope that prevents a child from falling over the edge in fear.

When Abby Sayles’ mom mentioned to Abby’s nurse Matt that her daughter wanted to marry him a chain of events started that have cumulated into a night of Courage, Hope, Love, and Life.

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Abby and Matt at the Abby & Matt’s First Dance

This celebration is one of the most important events that Nick’s Fight to be Healed Foundation sponsors. It’s a celebration, a dance, and a time for families to dress up, be together, and forget about cancer.

We want you to be with us. This dance is free to all children and their immediate families who are currently battling cancer or have finished treatment. For a small donation, it’s open to other friends, families, and anyone else who wants to join in the celebration.

Special thanks to our fellow foundations and volunteers who are donating their resources to make this a night to remember: Maddies’ Mark, Play it Foreward, Cool Cat DJ, Outside the Box Photography, and Elizabeth Fox Photography. And a grand thank you to Glen Sanders Mansion, who is sponsoring the room and many fun surprises!

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Registration ends on January 29, so get your tickets today!

Dance to be Healed Registration