Annual Donation to The Melodies Center

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Nick’s Fight Board L-R: Liz Carr, George Sisco, Colleen Williams-Wright, Dr. Lucas (Director of Pediatric Oncology), Angie Silipigno (Child Life Specialist, Melodies Center), Janine & Lucas Cammarata, Jonathan Isaksen, Annette Romano. Not in photo: Karen & Mark Patchell, Ann Frantti, Angela Chieco & Susan Sukols

A heart full of love and time spent helping others is a good day. When we come together to share the fruit of our board and community’s hard work that is a fantastic day.

On Thursday, December 14, Nick’s Fight to be Healed Foundation donated $25,000 to the Child Life Specialist position at The Melodies Center at The Bernard & Millie Duker Children’s Hospital at Albany Medical Center. In addition, we donated $15,000 toward technology needs in the new teen technology room that is currently being built in the pediatric oncology clinic.

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Lucas Cammarata, Angie Silipigno (Child Life Specialist), & Janine Cammarata

Lucas and I, as well as Annette, have seen first-hand how important and vital the child life specialist is to the children and teens being treated for cancer. They balance the medical and emotional needs of each patient. Angie is the only child life specialist in the clinic. There are more on the in-patient floor, but Angie meets every single patient as they are diagnosed. That’s 90 new patients a year, but includes all the patients who come for treatment from the previous years and check-ups from the years before that! Approximately 900 children, teens, and young adults are seen at The Melodies Center each year! Angie treats every single one of them as if they were her own. She feels their pain, revels in their successes, and holds them all in her heart. She is a major reason why we work hard all year to raise money.

Nick’s Round Table has raised money for the Teen Tech Room, and it is another huge need that we can’t wait to have filled. Teens and young adults with cancer are often in a transitional part of their life. Some are going through puberty, some are starting college, some are starting careers or life with a partner/spouse, but suddenly they are thrust into a world where they aren’t sure where they fit in. A teen/young adult’s life has not only been disrupted, but displaced.

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Nick’s Round Table L-R: Becca Abel, Angie Silipigno (Child Life Specialist), Katie Kelly, Sarah Olsen, Brittney Decker, Grace & Claire Isaksen, Rob Saba (Dir. of Development, Grateful Patients and Families at AMC)

Having this teen/young adult haven will give this specific age group a space to decompress and connect to their life outside of cancer. It can be a space where they can bond with others in their situation and hopefully feel the support we have for them and every other child diagnosed.

It was a busy year for us with families in need. Over $25,000 granted in financial assistance, $2,400 in gift cards for patients and families, $9,000 for Family Hope Bags, $2,000 in Nick’s Comfort Bags. This doesn’t include holiday support, magazines, DVDs, video games, arts & crafts, and anything else that comes to our attention. The time and effort that our board and volunteers put into making this all come together cannot even be counted. Board member Karen Patchell visits the clinic once and sometimes twice a week with Chloe our therapy dog and also to do yoga. The children absolutely love her!

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Amelia & Bella love yoga!

I couldn’t be prouder and more thankful for everyone who makes up our foundation. It’s important to sit back and absorb our accomplishments this year and since the beginning. Nick Cammarata and Luke Romano are surely proud of all we have done in their names.

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Thank you to everyone, and we look forward to continuing our mission in 2018.

Flow to be Healed Yoga Program

Announcing Nick’s Fight to be Healed Foundation’s new Flow to be Healed Yoga program at The Bernard & Millie Duker’s Children’s Hospital in The Melodies Center!

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One of our biggest missions is how to reduce stress for the entire family when a child is diagnosed with cancer. We have focused on helping with financial needs and emergency items for initial diagnosis, and anything that will distract, comfort, and keep a child connected to those they love. It’s healing, effective, amazing work.

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Karen Patchell, creator of Flow to be Healed yoga program at The Melodies Center doing a pose with Bella Caruso, while she is receiving chemotherapy.

But when you can teach a child that everything they need to fight stress, fear, pain, and frustration is within, then you empower them to be the captain of their own vessel. They have an internal tool that they can literally use anywhere! Bella loves the games and the stretching. She even showed her mom some of the poses when she got home!

Karen has been a part of Nick’s Fight to be Healed Foundation since its inception. A second mom to Nick and Stephen, she has dedicated much of her life to helping kids with cancer. When Karen decided to become a Registered Yoga Teacher (RYT) for children, she found her calling. She slowly brought yoga into The Melodies Center with fun games like blowing up a balloon to teach about breath or sharing books on yoga that featured different animals and how they represent yoga poses.

This was positively received by the staff at the clinic, and the program began on Friday February 17, 2017.

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Not only is the dragon on the mat a symbol of our foundation, but it is a focus point. Focusing on an object or stationary point is calming, because it stills the body and brain and helps maintain balance in standing poses. It also allows the children to move their bodies in a safe way instead of looking around at distractions.

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Karen standing in tree pose with Amelia and Bella.

Amelia pictured in purple was one of Karen’s first students and was thrilled to be there for the first gathering. Her mom says, “She LOVED it and I think it is great….it’s something relaxing for the kids to do but fun as well.”

Not only is yoga fun, but it helps the children deal with the uncertainty and pain that can come with cancer treatment. Karen teaches a type of breathing called Lion’s Breath where you inhale, then open your mouth, stick out your tongue, and breathe out with a roar. Concentrating on breath, takes their mind off of the anxiety or discomfort of getting their port accessed, for example. The action gives them control in a situation where they don’t have much at all.

Rob Saba, Director of Development, Grateful Patients and Families at Albany Medical Center, happened to be giving a tour when he came upon the yogis practicing. Rob shared how this program provides not only much needed distraction, but socialization and interaction, which helps heal.

 

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Anyone can do yoga. Even a child connected to an IV pole.

A child’s cancer journey can last up to three years and sometimes longer. Angie Silipigno, Child Life Specialist, at The Melodies Center is excited about this program because they are always looking for new and innovative ways for children to improve their experience. Nick’s Fight to be Healed Foundation has always recognized that it takes more than medicine to heal a child.

Angie writes, “As I observed the first session of Flow in clinic last week, I saw wonderful things happening . . . Two young girls socializing with one another, engaging in physical activity despite the presence of tubing and IV poles, the passing of time in a positive way, exploration of their bodies, and above all, lots of laughter.  One of the best parts of this program is that it can be used with any age patient, as well as parents and other caregivers . . . At a time when a patient may be feeling self-conscious about their bodies or their physical abilities, this can be utilized to help them become more aware of their body using breathing, relaxation and stretching to establish an improved level of comfort and empowerment . . . Karen has a warm and welcoming presence. She has such a natural ability to assess a patient’s comfort level within a brief moment and meet them right where they are.”

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That’s the healing power of yoga. Accepting where you are at the present moment and making the most of it. Despite the fact that these children are battling cancer, they can heal through connections, yoga poses, and laughter.