Liam has had a long and hard battle. He has relapsed twice and had to go to Rochester for a bone marrow transplant. We are lucky in that Golisano’s Children’s Hospital is an option for transplants, and young adults, such as Kayla, who go to college in Rochester take it upon themselves to bring comfort bags to patients and visit. Kaya met Liam and helped him get through that hard time.
I first met Liam and his mom when he was inpatient at The Melodies Center in Albany. I walked in, and Liam was watching a cartoon show on TV. He was totally engaged in it, and so I talked to his mom for a bit about our kids, what Liam was going through, and just life. Parents need a break to take care of themselves, reset their frame of mind, and get fresh air. I remember never wanting to leave Nick, and the only time I did was if my husband was there with him. I felt like I had to do everything, and it wore me down.
There is nothing wrong with taking time to go for a walk, getting coffee with a friend, finding a quiet spot and breaking down. If we don’t take care of ourselves, then how can we be mentally and physically fit enough to care for our sick children and make critical decisions? It is not something a parent should feel guilty about and yet we still do.
As we spoke, I pulled out a Lego set, and BAM! Liam’s eyes caught mine, and his face split into a huge smile! Apparently I hit the jackpot. Liam loves Legos. It takes a small gesture, the touch of a hand, a hug, a gift, or a word of encouragement that can make a child’s day brighter. I also gave Liam’s mom and his sister some lotion and body spray. Nothing like some body care products to brighten a gal’s day! But to have something fresh and new to give hope is so important!
This is why we work so hard–to bring a smile, to give hope, to make a positive difference in someone’s life. Liam’s mom knows that these kids are the strongest, bravest, and wonderful fighters. This is a common theme that all the parents have said about their kids. They endure more than most grownups could. They are true heroes. Seeing other kids getting through their journey and thriving, the medical staff, and their faith helps.
Of course visits from friends and someone reaching out a helping hand can go a long way. What can you do today for someone you know battling cancer? Don’t wait until tomorrow or think that someone else is doing it. You don’t know how your caring gesture might impact that person. Show love. You may just save their life.